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Home » Eye Care Services » Your Eye Health » Eye Conditions » Retinitis Pigmentosa

Retinitis Pigmentosa

Retinitis pigmentosa (RP) is an eye disease that is inherited, and very rare. About one in four thousand Americans are affected by this disease. The retina, which is the light-sensitive portion of the eye, degenerates progressively over time. The result of this degeneration is the loss of peripheral vision, loss of central vision, night blindness, and sometimes blindness.

Retinitis Pigmentosa Symptoms

Childhood is when the first symptoms of retinitis pigmentosa generally appear. Usually both eyes are implicated in the disease. Sometimes RP doesn’t appear until older age, at age 30 or even older.

The main symptom of RP in the beginning stages is night blindness. Tunnel vision may develop in the later stages of the disease, where central vision is affected, and only a small portion of sight is available.

One study of patients suffering from RP revealed that, in patients 45 years and older, 52% had at least 20/40 central vision in one eye, 25% had 20/200 vision or below, and 0.5% were completely blind.

Causes of Retinitis Pigmentosa

Very little is known about the causes behind RP, beyond that it is an inherited disease. Scientists believe that defective molecules in our genes cause RP. This explains why the disease affects patients so differently.

If one parent carries the defective gene, it’s possible to get RP, even if your parents do not have the disease. Approximately one percent of the population are carriers of the RP recessive gene. Sometimes this recessive gene is passed on to the child, who will then develop retinitis pigmentosa.

RP affects the retina in the eye. The disease causes the light-sensitive cells that are located in the retina to die gradually. Most often, the cells that are used for night and peripheral vision, called rod cells, are affected. Sometimes the cells that are used to see color and for central vision, called cones, are also affected.

Diagnosis and Treatment

The main diagnostic tool employed is visual field testing. This test determines how much peripheral vision loss has occurred. Other diagnostic tools may be used to test night vision and color vision.

Few treatments exist for RP. What is available helps conditions associated with RP, not the disease itself. For patients older than 25, there is a prosthesis system that was recently approved. This system captures images via glasses, and transmits the signal captures to an implanted device located on the retina.

Most treatments center around helping the patient learn to deal with their vision loss. Psychological counseling, and occupational therapy, may be recommended. Technological instruments that help with low vision, such as illuminated magnifiers, can help patients with RP see as well as possible with their limited vision. Some doctors recommend vitamin A supplements as there is some evidence that vitamin A might help delay the progression of the disease.

For the future, scientists are hopeful that there will be additional treatments for RP, including new drug treatments and retinal implants.

Dear Valued Patient:

We plan to re-open on May 20, 2020 to a limited schedule by appointment only—please set appointment online or call or email first.

We look forward to see you again soon!  We place the highest priority on the health and safety of our patients and our eye care staff.  Please read below:

Please read the following carefully to prepare for your visit to our office. We are implementing many new and more stringent procedures to ensure the health and safety of our patients and eye care personnel based on guidelines from the Alameda County Health Department and the CDC to help prevent the spread of COVID-19. During this time we are requiring the following for every patient and in-office encounter:

+We are starting with a limited schedule of appointments for better social distancing and for the safety of our patients (thank you in advance for your patience and understanding).

+All visits are by appointment only, there are no walk-in visits available

+All patients are required to wear their own personal mask before entering the office

+All patients are required to check in over the phone before their appointment

+Insurance coverage verifications must be taken care of before entering office for appointment

+Patient will wait outside in car until notified by text or email when they can come in for their appointment, upon entering, patient’s temperature will be taken and their hands sanitized with alcohol cleaner

+There will be no waiting area in the office, patient will be seen right away-please be on time

+Family or caregivers will need to wait outside in the car, as we will only allow patient to enter office.  Verbal consent for minors is acceptable. Updates will be given family or caregiver over the phone as needed.

+All glasses, contact lens orders will be by curb side pick up only—please call or email and we can help you set up a time to pick up your eye wear safely, maintaining social distancing

Our doctors and staff will increase our cleaning and sanitizing protocols:

+We have the latest HEPA air filters with UVC light disinfection to destroy bacteria and viruses

+Wearing protective face shields and surgical masks and medical grade disposable gloves

+All exam equipment and every surface is sanitized fully with hospital grade sanitizer after each patient encounter

+We have a new safe system of disinfection for all frames which have been touched or tried

+We screen all patients by phone to assure they have been healthy prior to their appointment

+All staff and doctors have passed additional training in more stringent sanitizing protocol

Thank you for your patience and compliance to these new and required guidelines. Our goal is to take care of your eye care needs while keeping you and your family healthy. We also want to help our community overcome this pandemic.

We will get through this together.

Please let us know if you have any questions or need more immediate assistance. 

You can set up a future appointment online at EyeCareDrLee.com or send an email to EyeCareDrLee@gmail.com or DrLeongOK@gmail.com  or call 510-668-0877

Please stay safe and stay healthy.

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Stay up to date on our COVID-19 pandamic protocols Read Our Blog Post…

Our office continues to monitor the local health announcements on a daily basis. Optometry is an essential service and we will open to new health guidelines to help our patients while keeping everyone healthy. Please read our blog updates for our open date and new safety guidelines. Let us know if you have any questions or immediate eye care needs. Need contact lenses? Let us know, as we can send orders to you with free shipping.
We are responding faster to direct email:

eyecareDrLee@gmail.com

drLeongOK@gmail.com (for ortho-k)

Thank you, stay safe and stay healthy.

COVID-19 guidelines from CDC: https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/prevention-H.pdf